Hi all, hope everyone is well. Yes, there is a lot of stuff going on, but also, some unanswered questions from earlier this summer. As some of you might have noticed I vanished for a minute there. Know that when I do, it’s usually for a very good reason…I think eyelashes and hair falling out is a good enough reason, don’t you?
Late April-early May is when it started and I mentioned this in one of the blogs from that period. Time for the update: who would think that in 2 1/2 years into being a Celiac; a well-informed, impeccable eater, and someone who tries her best to take care of herself, how I would, yet again, have an unsolved mystery???? When the eyelashes and rashes on my skin started I truly thought it was from too much makeup while filming, Blue Bloods, (the show I do on CBS). When the season ended the eyelashes and rashes continued. I started to have big spaces where eyelashes once sat and now nothing, not even small re-growth. At the same time, I was getting these hot burning rashes and to top it off I was seeing far too much of my scalp on the top of my head than one I would like.
Now I’ve never been a vain person but HELL, how much is one person suppose to give up with this disease? I was not about to let go of my eyelashes and hair now, too. I started to do my research which came up with a thyroid problem, Lupus, and other not so wonderful options. For me though, I’d rather know what I may be dealing with and armed with questions when going to seek a doctor. And go to the doctor I did, 10 of them! 10 of them in a three week period – not to mention having Lymphatic Drainage – going to see an energy healer, and anyone else who would try and help solve this mystery. My blood-work for many other Autoimmune Diseases came back all negative.
What did come back is a slew of new allergies, What?!?!? I’m already Gluten, Dairy, Soy, Corn, and Refined Sugar – Free. What am I allergic to now? Air? No, it was Almonds, Eggs, Chocolate, Watermelon, Broccoli, Avocado, and Chicken, and so on and so on. The swelling in my face from my eyes had now taken over my entire cheek that brought me to the ER one weekend, of course, they had no answers. My research led me to a naturopath doctor who told me about Leaky Gut Syndrome. It’s something I knew about but didn’t think it pertained to me. Think again! All Celiacs most likely have this condition. Leaky Gut Syndrome, is a gastrointestinal disorder in which the intestinal lining of the digestive tract becomes more permeable, or “leakier,” than normal, due to repeated irritation. The small intestine is designed to allow tiny particles of digested nutrients to pass through its wall and into the bloodstream. These are then distributed for use throughout the body. But due to a variety of causes, the intestinal wall can become more permeable and allow larger, less digested particles and toxins to pass through—causing Leaky Gut Syndrome. The body then recognizes these particles as foreign “invaders,” and the immune system attempts to fight them off—which can set the stage for various autoimmune disorders. So, basically, anything that was getting into my bloodstream, my immune system thought it was a foreign substance therefore making me have an allergic reaction to it.
What to do? Well I’m on a mega-genetic drink for Leaky Gut called L- Glutamine, tons of Acidophilus and Quercetin. Please do your research and talk with your doctor if you believe you are experiencing this. What I also learned was that the food rotation diet is a must for all Celiacs !!! Since 2009 I’ve done countless research on the subject of Celiac and am still shocked when I discover something new. A food rotation diet is a vital part of a Celiac’s diet. Otherwise you easily develop other allergies. The foods that showed up in my blood-work were everyday things I was eating, on a daily basis. I set up a simple rotation in my frig of mandatory milks to keep in rotation. I also made a simple calendar: what I ate on Monday I couldn’t eat until Friday and so on. I discovered a great site to help understand more about the Food Rotation Diet, please click on the link.
As far as my eyelashes and hair – they are growing back…for now. Still need my gut to heal, but, I, of course, didn’t give up on my treats. I’ve managed to create some completely allergy-free treats! Soon I will be making muffins and cookies out of air. Until then, stay well and look for my new blog post – Oatmeal Raisin Cookies Completely Allergy – Free!!