Hey all, As many of you know when I disappear from here that usually means that some not so great stuff has gone down. You would be right in your assumption. As many of you know I had some issues with my day job and whether or not this thing called, Celiac, that I’m graced with, was actually real. I’m not going to get into the whole story because it makes me too sad and angry every time I go over it. I’m sure many of you know anyway already and i believe this blog is about putting forward positive not negative.
There are many things I do need and want to share with you.
First, this Sunday at 9pm on Fox, a TV show called, Fox Files, did a piece on me and the day in the life of this Celiac. It also goes into the day job debacle for more clarity on that situation. I’m hoping you all will watch and encourage your friends and family to do the same. WE NEED PROPER EDUCATION ABOUT THIS DISEASE! As I’ve said from blog 1 that lack of correct information and education about Celiac disease and what that TRULY means is frightening. I’m hoping by opening up my life, people can see and learn that this disease has little do do with an allergy and merely changing your diet but is an AUTO IMMUNE DISEASE in its truest form. Which brings me to my second point-
Second, when the story about what was happening to me in my job broke there were a lot of different reactions. Many and I do mean most, were positive and supportive but I will get to that in a moment. The comments and stories by “journalists” speaking about a disease they didn’t have, a person they didn’t know, me, and a situation they clearly knew nothing about was astounding and quite frightening. Some of the comments I read were..
“I was a lazy actress”
“I was doing this for PR”
“If only I just ate gluten free I would be fine”
“I sound like i’m playing the poor victim”
and my all time favorite was that,“I was making it seem as though celiacs were disabled.”
I know I just said I would not spew negativity here but this needs to be addressed and I will tell you why. The fact that anyone, Celiac or otherwise, can make judgments on someone else and especially about their health is preposterous. The list I’ve stated above is the exact reason why we MUST move forward to help people understand about this disease and that is why I am mentioning this nasty display of ignorance. What’s scary is that some of those comments came from other Celiacs! I’m psyched for you if you are a Celiac who eats gluten free and feels fine. That is not my story though nor is it for many others. Again education comes into play here. A FACT, the longer you go undiagnosed with celiac disease the more havoc it does to ones body. My diagnosis took almost 20 years! Another fact I’ve been in the acting business for 20 years and can count on one hand the times I was ever in the press for anything other than my work. And lastly, a victim or disabled? Words I don’t even have in my vocabulary. I come from a very very modest upbringing, and worked hard, broke my ass to get everything I’ve accomplished. At this point in my life to discover this disease I chose not sit down and cry in my gluten free soup and instead bring hope and courage to lead the way for us ALL regarding this disease. So I beg of you all who are reading this, stop judging others until you walk in their shoes Celiac or not.
Last but most certainly not least:
I want to thank you all from the bottom of my heart for your outpouring of support. It has meant more to me than you can imagine. Its scary, as many of you know, when your body turns on you with this oh so sly disease. It makes you not only deal with all the fun physical aspects of it but the mental, feeling very alone. So to know so many of you feel the way I do was a gift. With this blog, my book (soon to come) my non profit organization, and many more things i have coming your way I will share that gift even further and hopefully get some positive change for all of us. So no celiac anywhere feels alone, scared, misunderstood, persecuted or left having to explain, AGAIN, what ails you.
I truly love you all for your loving support.
A special thanks to Gluten Dude and the other bloggers who went to there computers and intelligently said their peace. I thank you a million times over!
Another thank you is to CBS. Yes I said CBS, without their lack of education about this disease and not being very supportive of it or me for that matter, they freed me up and pushed me even harder to educate the community about Celiac. Also to get much needed HEALTHIER products out there for us. So what I’ve been trying to get off the ground for two years now, yes, wait for it……………. My Jennifer’s Way Bakery/Safe Haven for Celiacs is opening in the beginning of the year!!!!!!!!!!!!!
Ok so back to goodness, great recipes coming your way and education for all!