Are you aware that it’s Celiac Awareness Day today? If so, awesome! If not, then that’s what this new campaign I’m doing is about. Celiac Disease affects 1 out of every 133 people and that number is growing fast. We Celiacs need to get the word out, the CORRECT word out, about what this disease is REALLY about, and I need your help. I know how so many of you, like myself, have felt so unheard with this disease. Doctors, friends, even family suggesting that maybe your physical symptoms were somehow in your head or mind. Well, now is your time to speak your MIND, raise awareness, and help others suffering like you.
Here’s what I need you to do. I’d like to create a Campaign for Celiac Awareness in a short film version by combining your video stories with mine. Many of you know my story, but here’s a short video summary below to give you an example of what we’re looking to do. We will also feature your full videos in weekly upcoming posts.
(If you’re reading this in email, click here to watch the video.)
So, what is your story?
Grab your video camera or your iphone and put yourself on tape!
If you’d like to participate, I’ve listed some helpful and *required guidelines below. Please note that we will need release forms signed to allow us the use of your video, your story and your voice. The purpose of this video is to raise awareness and inspire our health community to learn more about this disease. All (if any) profits from the film will go to the Jennifer’s Way Foundation for Celiac Education to further promote our cause.
All entries MUST be Celiac.
Your video must begin with: “My name is ____________ and I’m a Celiac. It took ___ years (months/weeks) to be diagnosed.” And then proceed to tell us about your diagnosis process and your journey. How long did it take you to get a proper diagnosis? Were you given helpful instruction on how to survive and become healthy after being diagnosed? Please list examples of misdiagnosis and/or other physical/social/mental problems that came from being undiagnosed for so long. For example: infertility, cancer, nerve damage, hair loss, osteoporosis, loss of friends or social events, depression…
Please keep your video under 3 minutes.
Please also sign and send this release form along with your video submission, allowing us to use your footage. Also understand that there is no guarantee of usage. [Click here to download the required release form]
I understand that most of us are not video production professionals, however please try to make sure you have good, even lighting and are in a neutral environment. Avoid logos on your clothing and in your surrounding environment. Highly visible logos may prevent us from being able to use your footage. Please also send high resolution footage if you can (the larger the file size, the better the resolution).
HOW TO SEND TO US
Submit your videos to firstname.lastname@example.org. Please note, anything over 20 megabytes will not be accepted by our email server, so you might consider using one of the following services to send your large file:
I’m so thrilled to join forces with you. Seeing your faces and hearing your stories live on film will be close to meeting you in person, and I can’t tell you how much that means to me! We need the TRUTH of this disease to get out there, and with your help we can get it there. Many voices are louder than one. Make your voice and your story known.
I hope to “see” you soon. Much love!