Is there an actual test out there exclusively for the detection of celiac disease? Also, have you (Jennifer Esposito) or any member on this site ever been tested for the stomach bacteria H-pylori? H-Pylori has the same symptoms as celiac disease as well as many other digestive disorders–especially stomach inflamation and acute pain. The test is performed by taking a breath sample. Apparently, it is a very common cause of digestive difficulties. Does anybody have experience or knowledge about H-Pylori? It is cured with a one week regiment of very powerful antibiotics. Please help and thank you.
]]>SoHo and many others coconut milks have carrageenan in their boxed products. The ethnic food line ones like Goya and others in the cans are often carrageenan free – though I could not get at the ingredients on to recheck this- a common issue with lots of companies as they may display the nutritional breakdown but not show the actual ingredients. I think Thai coconut milk and a few other canned ones are also carrageenan free but have no emulsifier whatsoever so you need to give them a good shake before using even after transferring to another storage container – as there will be separation.
Whole Foods noted in their mail to me that they are working to get the carrageenan out of their dairy and non-dairy products, but it is not an easy task. I specifically asked about a fat-free half-and-half, heavy/whipping creams-liquid and canned, and they noted getting the consistency of these right without using carrageenan has been an issue for them. I told the customer service contact I don’t mind shaking to avoid the carrageenan!
]]>What a bummer! Another thing that I have to eliminate. Fortunately, the Whole Foods brand of almond milk does not have carrageenan. I cannot find a replacement for my coconut milk though. : (
I would like to suggest that we take the time to write the companies who make our favorite products and ask they they find an alternative to using carrageenan. If enough people do so, maybe they will make a change.
]]>WFs in our area also carries Organic Valley Buttermilk – for making pancakes, cornbread, etc. – this is the first brand I have seen without carrageenan. I am thrilled – the kids will be getting homemade GF-CF buttermilk pancakes and corn muffs this week!
Finally, if you have issues with carrageenan – you may also have issues (as I noted) with seaweeds in general…WF carries Eden canned beans that have kombu seaweed (brown type) that I react to – while WF’s 365 canned beans are free from it.
]]>I recommend for a month to first eliminate all food products with carrageenan as well as corn, xanthan gum and whatever you think are causing you an issue. Once you have a week clear of all symptoms continue to stay away from the carrageenan and any other seaweed products or additives – as these are a clear issue for many celiacs. One by one add in other things that you think may be an issue – add only one fodo type a week – start with soy for examples (if this has been an issue) but not soy milk that has carrageenan or you will muddy the test waters.
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